Friday, June 12, 2015

Eating

John has had two meals by mouth this week! A burger from McDonald's earlier this week and tonight some scrambled eggs with a burrito.  He has been having green drinks zero to three times a week for the past month, as well as occasionally trying bites of different things.  Until this week, it's only been a bite here and there, so it's pretty exciting that he ate two whole meals!  He said that the eggs were not disgusting and that that is his new level for something to taste good.  The chemo made most things taste disgusting.  Earlier in treatment, that side effect only lasted a few days.  After his last dose, this is about how long it has taken to get over that side effect.

He has started feeling a little closer to normal this week, but he does still run out of energy pretty fast.  He went to work for almost a full day earlier this week, but he was pretty wiped out when he got home.  The boys asked when dad was going to get out of bed and they weren't sure how to react when I said that he wasn't in bed, he was at work.

Next week, we are going to start working on small steps to help regain some of John's strength.  We are also going to have scans on Monday and finally know for sure if all the tumors are all gone.  If the tumors are gone, then the port can come out at the next doctor appointment.  He won't need sedation or anything, they'll just take it out in the doctor's office.  His feeding tube will still stay in though - AT LEAST until he is eating 2400 calories/day by mouth, possibly until he has gained a certain amount of weight back. 

June 15th are the scans.  We should know the results some time on the 17th!

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