Last Dose

John's chemo was supposed to be Monday and Tuesday, but there was a communication error in scheduling, so we ended up getting the chemo today and tomorrow.  It worked out great though, we were able to spend Tuesday celebrating Daniel's first birthday.

Scans are scheduled for mid-June.  Next appointment with the doctor is end of June.  At that time, we can take out his port if we want.  The feeding tube is staying in until he can eat 2000 calories by mouth.  Up until John gets over this dose of chemo nobody has worried too much about his nutrition.  Everybody has just worried about him getting any calories at all.  Now we are going to try to get a nutritionist to write a meal plan to help John recover better.  Hopefully, it's all food I can cook for him

Long-term side effects that we discussed with the NP today are that he should return to his normal self, but aged 10 years.  John has had neurapathy in his fingers and toes; the NP thinks he might get most, if not all, of his feeling back.  John still has crazy sweating and chills that nobody has figured out a cause for yet.  Hopefully we can get that figured out sooner, rather than later.  It keeps John from getting good sleep.  The NP thinks that John's dizziness will go away when chemo goes away. She thinks his taste will come back eventually.

The boys have just started asking, "When is dad going to stop being sick?"  So this is a good time for this last dose!